A Special Request

Mother's Day campaign prizes

The sad reality about TTTS is that in entirely too many cases, we lose one or both babies. That was the case for me and so many of the TTTS moms that are out there. And for those parents who have double survivors, they live in the shadow of that fear that existed until the…

Battling TTTS in Australia?

TTTS laser surgery

Yesterday I came across an article about Kasey-Rae Chambers and her twin daughters Hallie, left, and Harlow. Kasey-Ray was diagnosed stage 3 at 16 weeks, and she and her girls underwent fetoscopic laser surgery. The surgery was successful, and although the twins were born at 28 weeks and spent two months in Neonatal intensive care…

Braxton and Connor {TTTS Tuesday}

Congratulations to Brooke and Willis – for raising over $2000 for the TTTS Foundation with their Walk for Life! Yay! Today I want to share another TTTS Tuesday story. I was just recently introduced to Bethany, and she wrote a beautiful piece about her sons, Braxton and Connor. Braxton and Connor My name is Bethany…

The Walker and Willis TTTS Walk for Life

The TTTS Walk for Life March 8th – St. Joseph Park, St. Joseph, TN. Brooke Myrick and family are hosting the Walker and Willis Birthday Walk for Life. Sadly, many of us who have gone through Twin to Twin Transfusion Syndrome know exactly what it is like to have a Twinless Twin. I have a…

Neurodevelopment for Twins after Fetoscopic Laser Surgery for TTTS

Many families are very concerned about the neurological development of their twins after suffering Twin to Twin Transfusion Syndrome (TTTS.) There is good news: a new report just released this week indicates that most twins who undergo fetoscopic laser surgery for TTTS will have normal neurodevelopment by the age of two. Maternal-fetal medicine and clinical…

Identical Twins were ONE person

TTTS

I found this video on YouTube as I was searching around. TTTS videos often pop up as recommended for me. I thought this was a really good, short, and informative video about TTTS. Even though I knew it, I’d never heard it voiced out loud by a medical professional… identical twins are one person. It’s…

Always my twin…

I think one of the hardest elements of losing one of my twins to Twin to Twin Transfusion Syndrome (TTTS) is the fact that I feel so cheated for my survivor. For me, as the mother, I deal with somewhat of an identity crisis. I am a mommy of twins with no twins. I worry…

Awareness & Education Save Lives

Sharing stories of those who have experienced Twin to Twin Transfusion Syndrome (TTTS) is critical, but so is sharing information about TTTS. This video was created by a close friend of mine, ReNee. Her twin daughters (who will be featured in an upcoming TTTS Tuesday!) were born at 28 weeks and spent months in the…